When I first had symptoms of POTS– lightheadedness, unusual fatigue, inability to speak due to brain fog, etc– they weren’t all day, every day, and I initially dismissed them as flukes. Had to sit down in the pharmacy line because I was about to pass out? So weird! Wobbly walking down the church hallway? So crazy! Can’t get words out? Super bizarre! Aw, I’m sure it’s nothing.
When symptoms became constant and inescapable and I was diagnosed with POTS, I’d never heard of it. It sounded kind of made up to me. I mean, Postural Orthostatic Tachycardia Syndrome… what does that mean, anyway?!? (Here’s what Wikipedia says— hmmm… that does sound like what I have.) I was slightly reassured to find that Mayo, Vanderbilt, and the Cleveland Clinic all treated it– I mean, those are reputable establishments– but I thought it strange that closer facilities like Emory, Duke, and MUSC did not and that a number of my doctors seemed to know nothing about it.
It’s taken me quite a while (understatement) to accept 1) that POTS is real; and 2) that I have it (actually, I still am not thoroughly convinced on a given day– I mean, really? This is so weird!). I suppose it’s a mark of my culture and generation that media portrayals of POTS make it seem more real to me.
Thus, I keep a running list of POTS in the News on this site. The latest mention I’ve found is that Ella of the famous Deliciously Ella recipe blog and website is doing much better after a 2011 diagnosis of POTS, according to this article in the UK version of the Huffington Post. She credits a lot of her improvement to the healthy, real, whole foods she eats. (Just take that with a grain of salt— ha ha– POTS joke.)
I haven’t made any of her recipes, but Ella’s website is beautiful and inspiring. Do you have any favorite foodie sites?