I have POTS (postural tachycardia syndrome) and NCS (neurocardiogenic syncope, sometimes called vasovagal syncope). These are two forms of dysautonomia, an umbrella term that refers to dysfunction of my body’s autonomic nervous system, the one that controls involuntary body processes (heart rate, blood pressure, breathing, digestion, etc).
Here is a 3-minute news clip that explains POTS.
For the wider world of POTSies (people with POTS) or for those who have a friend with POTS, NCS, or another form of dysautonomia, I am attempting to make a list of typical symptoms, along with descriptions that help explain them.
I experience all these symptoms, to varying degrees, almost every day.
1. PRESENTING… PRESYNCOPE: pre-fainting
– Presyncope in action, according to Kristi “I don’t like presyncope, but I REALLY don’t like public presyncope. I feel like I seem like a dramatic diva who can’t just keep it together.”
– Presyncope, according to Lisa “Now I know that if I’m experiencing pre-syncope, I need to sit down NOW, wherever I am.”
– Presyncope, according to Suzanne “I tell my daughter I’m sorry, and that her life is not over, she is just hitting the pause button sometimes, and that is ok. I thank God everyday it’s not worse. We share our story and try to help others. It’s our journey and our mission right now.”
3. TALK ABOUT TACHYCARDIA: rapid heartbeat
5. LOTS OF LIGHTHEADEDNESS; also, HOW I WAS DIAGNOSED WITH POTS
6. HELLO, HEADACHES
7. GOOSEBUMPS, MOTTLING, AND PALLOR… OH, MY!: Skin and appearance changes
8. IT’S HOT IN HERRRRE/ BABY, IT’S COLD OUTSIDE: Heat and cold intolerance
9. THERE’S AN ELEPHANT ON MY CHEST!: Chest pressure/pain and shortness of breath
10. HUH?: Brain fog and difficulty concentrating
The information presented throughout Even Rocks Cry Out is offered for educational and informational purposes only, and should not be construed as personal medical advice.